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Seeking Joy in The Midst of Chronic Pain

Seeking Joy In The Midst of Chronic Pain

If I were asked to sum up my current life in just one word, then there is only one word I could conjure which would adequately describe it. Pain.

From the moment I wake up, and until I (finally) fall asleep, all I can feel is the pain that assaults my body. The pain has become the bookends of my days. My entire life and existence becoming defined by its tight grip. It is all-encompassing. There are no aspects of life that the pain leaves untouched. And it’s become the strongest voice in my life.

"Pain becomes all-encompassing. It leaves no aspect of our bodies or lives untouched and becomes the strongest voice in our lives." Click To Tweet

The pain is like a kidnapper. It enforces you into a cage, you an innocent victim and the pain as your captor. It isolates you and robs you of your already fragile independence. Every step sends a jolt of debilitating pain throughout my spine and legs. It prevents you from venturing too far, shackling you to the house.

Chronic pain is the biggest thief. It steals your independence, your plans, your sleep…it steals your life.
"Pain is like a kidnapper. Enforcing you into a cage, and you as it's innocent captor. It isolates and robs you of your already fragile independence." Click To Tweet

As the days of crippling pain increase, so does the shade of the dark circles under my eyes, thanks to insomnia that develops as a result. Along with the dark circles, my eyes are red from all the tears shed as a result of the excruciating pain and the subsequent lack of sleep. Days in which my existence is more concerned with survival, clinging onto the edge of a cliff by my fingertips and grasping on until the time I can take the next dose of painkillers — medication which only dulls the pain. But, when the pain is at it’s worse, we will accept any relief we can get.

It can be difficult to feel happy or joy during a relentless pain flare. The unpredictable nature of the beast; not knowing when the next incapacitating pain will strike. I could be feeling great one minute and overwhelmed with immense pain the next. It is hard to find joy while trapped in a life that you didn’t want or ask for, and one in which you are unable to escape.

"It is hard to find joy when trapped in a life that you didn't want or ask for, and one in which you are unable to escape." Click To Tweet

Living with constant and unrelenting pain is much like living under a permanent dark cloud. Feelings of joy, happiness, and contentment feel like they are so out of reach. But when these feelings go on for so long, we realise that this has to change. With the realisation that the pain is forever so, we have to find happiness for ourselves. To allow a slither of light between the dark clouds, and welcome some light within the darkness.

When we realise that pain is forever so does the realisation that we need to search for joy within it.
"With the realisation that pain is forever,  we so to understand that we have to search for joy within it ourselves." Click To Tweet

For some, it sounds counter-intuitive; the idea that a person can feel such pain but can also feel happiness at the same time. How can that be so? It’s difficult yes, it’s not about denying the existence of pain but acknowledging and accepting it. Accepting the pain and illness as permanent companions limit the power they have over our thoughts and emotions. I can accept I am in pain and the unfairness of it, but also not allow the agony to stop me from welcoming positivity and joy in my thoughts.

I have experienced many incredible moments while being in a great deal of pain. Moments such as travelling, for example. My last encounter with travel was also one in which I was suffering a torrent of agony. It failed to stop me however from appreciating the awe-inspiring scenery before my eyes.

Travelling is one such pursuit that makes you fully appreciate the real magic and beauty of the world outside our immediate surroundings. But much more, it allows us to venture beyond our everyday life. Beyond our lives with chronic pain. It’s a beautiful reminder that there is so much more to life than pain. More to our lives, and more which defines us beyond pain and illness, something which can be difficult to remember while in the midst of such devastation. It provides the opportunity to steal time back from the horrible thief that is chronic pain.

"Seeing the world reminds us that there is more beyond pain and illness. It provides the opportunity to steal time back from the horrible thief that is chronic pain." Click To Tweet
The amazing scenery that I’ve seen as a result of my travels. Joyful and happy memories that they evoke despite the recollections of the pain and illness that threatened to blight the trips.

While experiencing such desolation during the everyday, mundane days of our lives, however, it can be difficult to find and appreciate moments of joy. When the pain is piercing, it is only by observing that for which you are grateful for is often the only thread of hope to grip tight. And without hope, we would not be able to see a way through the pain and the myriad of other symptoms that accompany it.

"When the pain is piercing, it is only by observing that for which you are grateful for is often the only thread of hope to hold onto – without hope we would not be able to see a way through." Click To Tweet
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Allwoing a small moment for gratitude and positivity with the The Happiest Gratitude Journal from The Itty Bitty Book Co: https://ittybittybookco.com/products/the-happiest-gratitude-journal

Joy is the smooth and creamy taste of chocolate on the tongue. Happiness is wrapped up beneath a warm blanket with a superb book. There is a pleasure to be found with a binge-watch of a favourite television box set. Or a movie marathon beneath a comforting blanket or duvet. Enjoyment is the distraction from pain and illness with an expedition outside the house. It’s the enjoyment of a warm and satisfying mug of hot chocolate in a favourite haunt.

Joy is an unexpected phone call or text from a good friend. It’s an acknowledgment that we are loved and we’ve not forgotten while the pain has shackled us to a sick bed.

Positive and uplifting quotes can help us find joy within our lives with chronic pain.
We can find joy even in the midst of pain and illness but only if we do our best to search for them.

There are moments of happiness and joy amidst the destruction and devastation of chronic pain. The sun can prevail amongst the dark, thunderous storm clouds allowing light to banish the darkness that exists.

"There can be moments of happiness and joy amidst the devastation of chronic pain. The sun can prevail amongst the dark, storm clouds allowing light to banish the darkness that exists." Click To Tweet

If pain is making its destructive presence known in your life, I hope you can find moments of joy regardless. And I hope that you are able to banish the clouds and the subsequent darkness with light and hope.

You are not alone.

  • Despite Pain

    Pain is so difficult to live with constantly, but I really believe that we need to search out some joy and happiness to focus on.

    February 3, 2019 at 11:12 am Reply
  • Jenny

    What a brilliant post, Rhiann. I could really feel the pain that you experience through your writing and I am so, so sorry that you have to contend with this. The fact that you can focus on positives and the happiness that can arise from things such and chocolate and books shows just how strong you are, despite everything that you go through. Big hugs. Jen xx

    February 3, 2019 at 6:15 pm Reply
  • Claire

    Yes, I get it! Funny how we have both used the same photo for posts about our chronic pain this week…..great minds, I guess!! I love your analogy of joy, happiness and pleasure – I agree with each one. Really good writing, Rhiann – personal, emotive and very real. Many of us spoonies will be able to relate! Claire x

    February 5, 2019 at 9:11 pm Reply
  • Amber

    Yes, seeking out the little joys of life is truly what keeps me going. Thank you for sharing! ❤?❤

    March 26, 2019 at 2:37 pm Reply
  • Raisie Bay (@RaisieBay)

    Seeking out the little joys is what can keep you going, but I don’t need to tell you that. I wish you many more moments of joy.

    March 29, 2019 at 8:43 pm Reply
  • J.Southerland

    Your article so perfectly and eloquently expresses my everyday life since my back pain and subsequent spinal fusion surgery but also gives me hope. Just this week I have begun to come to the conclusion that regardless what the surgeons,physical therapists, and pain management physicians say this pain I experience may be my new everyday normal and I can either let that swallow and eat my whole or persevere on and enjoy life in spite of it. To think I came upon your article by Googling ‘pain is the thief of joy’ this was nothing short of divine intervention. Thank you so much.

    October 2, 2020 at 6:16 pm Reply

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