November link-up party Archives

In Chronic Illness

5 Ways to Help Find The Light In The Darkness

November 20, 2020 3 Comments

Sheryl from A Chronic Voice, as well as sharing her own stories and lessons with chronic illness. Sheryl is an excellent support to other bloggers and writers living with illness and chronic pain. One such way is through monthly link-up parties whereby bloggers and writers share their stories through given prompts. For November, I have looked at ways to help find the light in the darkness during depressive episodes.

Trapped Inside A Revolving Door of Misery

During recent times it has often felt that I have become trapped inside a revolving door of misery. The symptoms I live with; symptoms that are already constant have become even more severe and relentless. Unsurprisingly, this has had a knock-on effect on my mental health; becoming depressed and anxious as the present flare refuses to abate. The result of which only exacerbates the already oppressive physical symptoms, which only makes me even more depressed and anxious. All in all, it feels like a terrifying ride I cannot get off.

"It has had a knock-on effect on my mental health; becoming depressed and anxious. The result of which only exacerbates the already oppressive physical symptoms, leaving me even more depressed and anxious." Click To Tweet

Living with a chronic illness can have a significant impact upon mental health and as such it can be difficult to find light in the darkness especially during a significant and prolonged flare.

Life with FND has taught me that I have very little control over its physical symptoms. The symptoms have a mind of their own, and any attempts to rein them in only prove to be futile. When experiencing this type of severe flare, the only thing I can control is how I react to such events. And the only aspect of my health and current flare I can take control of is my mood. It is up to me, therefore, to find ways in which to find the light in the darkness; ways in which to lift my mood and make me feel a little better despite such unrelenting physical symptoms.

"Life with FND has taught me that I have very little control over its physical symptoms. The symptoms have a mind of their own, and any attempts to rein them in only prove to be futile. The only thing I can control is how I react." Click To Tweet

5 Ways to Help Find Light In The Darkness During Depressive Episode

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What works for one person, however, may not work for another. So often it is trial and error to see what will work for you. But below are some suggestions which may help you out of a depressed or anxious funk, and help find light in the darkness during such episodes.

Incorporating a Comfort or Joy Box In Your Life

Well, what is a comfort or joy box? Put simply, a comfort or joy box is one which you keep items that make you feel happier or bring you comfort and to help you cope on those inevitable bad days.

"Put simply, a comfort or joy box is one which you keep items that make you feel happier or bring you comfort and to help you cope on those inevitable bad days." Click To Tweet

I know how all-encompassing those days where anxiety and depression run rampant that it can be difficult even to remember what helps you get through such difficult days. Or fatigue that is so intense prohibits you from even searching for such items. Hence, by keeping them in a box altogether, in easy reach is so useful. Even using bright, colourful decorations to adorn the box is also enough to lift your mood during the dark days.

In my box, I like to include a whole host of brilliant comedy films; The Proposal starring Sandra Bullock being amongst my favourites. It isn’t easy to find humour or joy when chronic pain is overpowering your entire life. Watching such brilliantly films, therefore, is a welcome distraction from the excruciating effects from living with chronic illness. And it’s also a welcome reminder that I can still laugh and find joy even through the difficult days!

Experimenting With Pushing Your Comfort Zone

I know that when withstanding such challenging flares, it can feel safer staying within your comfort zone. Often, the depressed and anxious voices that accompany such confronting periods whisper lies that you cannot do something or push yourself because of the limitations caused by such intense symptoms.

"Often, the depressed and anxious voices that accompany such confronting periods whisper lies that you cannot do something or push yourself because of the limitations caused by such intense symptoms." Click To Tweet

And although yes, it feels safe and secure staying within these limits, it only serves, however, to worsen the depressed and anxious feelings that accompany such flares. Staying inside the self-imposed limits chips away from your self-confidence, hating yourself, even more, when unable to escape.

But by pushing yourself outside your comfort zone using small, incremental steps may help you to increase your self-confidence and lessen anxiety. When successfully stepping outside your comfort zone, it increases your self-confidence as you begin to realise that you can do that thing or go to that place despite your symptoms telling you otherwise. The anxiety that arises when leaving your comfort zone also begins to lessen as you realise that you can do more than you believe.

"But by pushing yourself outside your comfort zone using small, incremental steps may help you to increase your self-confidence and lessen anxiety." Click To Tweet

Sanitising Negative Thoughts

When experiencing a prolonged severe flare, it is so tempting to attend to the negative, depressed and anxious thoughts that accompany such a time. The thoughts that scream ‘you’re worthless and useless’, or those that tell you that this current flare will never end. And thoughts that entirely concentrate on how awful you are feeling and how oppressive the symptoms have become.

"When experiencing a prolonged severe flare, it is so tempting to attend to the negative thoughts that accompany such a time. The thoughts that tell you that this current flare will never end." Click To Tweet

Although it can be challenging to think positively when experiencing intense symptoms, sanitising negative thinking can help you become more positive and making it easier to cope with life with a chronic illness – photo by **Blu Byrd** from **Pexels**.

These thoughts, unfortunately, we are forced to hear. However, we can choose not to listen to them or give them the attention they crave. Instead, in order not to be buried further into a pit of depression and anxiety, we need to learn to ignore and sanitise such negative thinking.

"Instead, in order not to be buried further into a pit of depression and anxiety, we need to learn to ignore and sanitise such negative thinking." Click To Tweet

Instead, we need to focus on positive thinking and reminding ourselves of affirmations such as ‘This too shall pass.’ The more that we can think more positively, the more we start to believe such thinking and start to see the light out of the darkness.

Launching A Regular and Consistent Sleep

Sleep can be a tricky endeavour when living with chronic illness and chronic pain. And especially during severe flares, it can be even harder to achieve. But, not getting enough sleep can also worsen feelings of depression and anxiety, further making it harder to cope with the physical demands of chronic illness. I know myself, that if I do not get enough sleep the next day I am miserably exhausted, pain levels rise, mood dampens and left unable to cope.

As much as sleep can be hard to come by when living with pain and other debilitating symptoms. Not getting enough can also worsen feelings of depression and anxiety too – Photo by **Ivan Oboleninov** from **Pexels**.

"Sleep can be a tricky endeavour when living with chronic illness. During a flare, it can be even harder to achieve. But, not getting enough sleep can also worsen feelings of depression and anxiety." Click To Tweet

But by developing a healthy bedtime routine; one that lets your body know it’s time to sleep can really help towards a good night’s sleep. For example, going to bed around the same time, every night allows the body to adapt to a more healthy circadian rhythm. And indulging in your favourite self-care practices before bedtime is also recommended as a way of relaxing both body and mind. For me, I like to read for at least thirty minutes before switching the light off. If pain continues to be a problem, consider using a heating pad against the most painful areas.

"But by developing a healthy bedtime routine; one that lets your body know it's time to sleep can really help towards a good night's sleep." Click To Tweet

Writing The Blues Away

Illness has taken so much in my life – my mobility, identity and self-confidence, to name a few. For me, writing has allowed me to reclaim power back from the claws of chronic illness. Articulating my experiences through journaling and blogging allows me to process the experience of being chronically ill. It also helps validate such experiences, revealing hidden vulnerabilities that even I may not have been aware of, if not for purging my emotions on paper.

"Illness has taken so much in my life. For me, writing has allowed me to reclaim power back from the claws of chronic illness." Click To Tweet

By writing my feelings, and becoming aware of masked insecurities it also allows me to become better adept at finding ways to manage fears and anxieties that arise during difficult times. For me, writing has become an important outlet for the frustrations of living with a chronic illness. It truly is a cathartic experience.

Writing can be an extremely cathartic experience and one which allows you to connect and help others. Thereby, it is an outlet that allows you to be productive – making you feel accomplished and happier – photo by **Lisa Fotios** from **Pexels**.

A Purpose In Writing

But it is a cathartic experience that not only helps me but allows me to connect with and help others in similar situations. Every like, retweet and comment on one of my many blog posts is a reminder that I am not alone in my struggle of living with illness, and hope others feel the same when reading my words. It is writing that has given me purpose and confidence in my abilities as my skills have improved. And I have become happier and self-confident as a result.

"Every like, retweet and comment on one of my many blog posts is a reminder that I am not alone in my struggle of living with illness, and hope others feel the same when reading my words." Click To Tweet

One exercise that has really helped me is by writing down everything that I am worried about before bed. By leaving my anxieties on the page, they are no longer playing on my mind and making a good night’s sleep much easier to come by.

In Chronic Illness

The Before and Afters Of Chronic Illness

November 13, 2019 6 Comments

Sheryl from A Chronic Voice, as well as sharing her own stories and lessons with chronic illness. Sheryl is an excellent support to other bloggers and writers living with illness and chronic pain. One such way is through monthly link-up parties whereby bloggers and writers share their stories through given prompts. This November I am using the prompts to discuss the before and afters of life with a chronic illness.

Life is messy. It comes with many responsibilities and obligations, and as we become older, these only increase. One such responsibility and one that often is accompanied by stress and worry involve financial responsibilities that characterise adult life.

Becoming an adult, although exciting; the thrilling prospect of freedom also coincides with the realisation of the financial burden of everyday life. The daily life of being an adult. The sudden understanding of everything that needs paying for when a responsible adult.

The Debt Incurred By Fun and Spontaneity

When becoming an adult with a chronic illness, there is an added financial burden — a sudden and new responsibility for paying for all the paraphernalia that accompanies life with a long-term condition. When living with a chronic illness, medications need paying as well as aids to make life easier when symptoms become out of control, and so on.

But the continuing paraphernalia of life with a long-term health condition is not the only things that need paying. There is also a hefty payback for every expansion of effort and energy undertaken. Often there is an apparent reason for the sudden flare in symptoms or a decline in energy levels. Sometimes, there is no apparent reason at all, and are left speculating the reason for the unexpected presence of symptoms.

"But the continuing paraphernalia of life with a long-term health condition is not the only things that need paying. There is also a hefty payback for every expansion of effort and energy undertaken." Click To Tweet

When living with a chronic illness there is a hefty payback for every expansion of effort and energy. Often such a payback comes in the form of a severe and debilitating flare in symptoms.

There is now no room to be spontaneous and reckless with our time. Doing so doing can provoke and anger the symptoms that are always present. As much as we take delight in going out, there is, unfortunately, a payback of the effort and energy that the given fun had required.

Life with a chronic illness is like being indebted to a loan shark; one that has interest rates so high that there is no possible way we can pay it back. The payback of every moment of fun and spontaneity is a debilitating increase in the symptoms that accompany such conditions.

"Life with a chronic illness is like being indebted to a loan shark; one that has interest rates so high that there is no possible way we can pay it back." Click To Tweet

Plunging Into The Unknown Possibilities of The Future

We often like plunging into the unknown possibilities that the future offers. We look forward to taking a leap and diving into new adventures. When living with a chronic illness, however, the future now arouses feelings of anxiety and dread. Those events and fun outings that we would once look forward to now induces fear due to the uncertainty that surrounds life with a chronic condition.

"We look forward to taking a leap and diving into new adventures. When living with a chronic illness, however, the future now arouses feelings of anxiety and dread." Click To Tweet

We are unable to pencil in the dates when it would be most convenient for symptoms to appear; they do so with no concern or care for the plans made in advance. Instead, arrangements are made with no knowledge of how we are going to feel on the day in question. Or the state our bodies are going to be in on the day in question. Plans that should induce joy and excitement now only prompts thoughts of ‘what if.’

It can be exciting to plunge into the unknown possibilities that the future holds, but when living with chronic illness, however, it can trigger feelings of anxiety and fear due to the uncertainty that defines living with a chronic condition.

We look ahead, and instead of seeing the unknown possibilities that the future holds, we can only see the pain and suffering that illness inflicts. It can be quite a burden when the only certainty of the future is one of pain and suffering.

"Instead of seeing the unknown possibilities that the future holds, we can only see the pain and suffering that illness inflicts. It can be quite a burden when the only certainty of the future is one of pain and suffering." Click To Tweet

“No, you may not go to the ball!”

Ah, remember the blissful and carefree days before the existence of illness and its numerous symptoms? The many invitations that we’d receive to ask for our attendance to social gatherings hosted by friends or family. The opportunity to escape the monotony of a night at home; the promise that we will go to the ball.

Now, the future and the continued presence of chronic illness, the doors to such balls are firmly closed to us. Usually, we begin to be overlooked, no longer invited to parties because illness has forced us to cancel on numerous occasions in the past. Or, sometimes people believe that we will not be physically well to attend. Our fairy godmother no longer in existence, and no longer able to go to such festivities.

When living with a chronic illness we, unfortunately, don’t have a godmother to allow us to go to the ball!

Invitations that now arrive in this new present and continued future take the form of letters for doctors and hospital appointments. Those living with a chronic illness will know the difficulties of going out when plagued with disabling symptoms. At times, it can become so bad that the only time we do go out is to such appointments.

"The future, which once gleaned with endless possibilities of nights out, is now blighted by illness. And the future replaced with attending countless hospital appointments in place of nights out." Click To Tweet

The future, which once gleaned with endless possibilities of nights out, is now blighted by illness. And the future replaced with attending countless hospital appointments in place of nights out.

Organising Life Around The Changes That Illness Brings

The past, once full of spontaneity and life led on impulse becomes no more with the arrival of a chronic illness. The future, driven by pain and illness, now needs our lives organising around the changes that it brings. Our days, once lived on a whim, becomes carefully organised, attentive to the limitations caused by this permanent new companion.

"The future, driven by pain and illness, now needs our lives organising around the changes that it brings. Our days, once lived on a whim, becomes carefully organised, attentive to the limitations of chronic illness." Click To Tweet

Life now and in the future, are unable to cope with days crammed full of activity due to such limitations chronic illness inevitably brings. So we must reevaluate what is most important to us, and what we can do to organise our days into something manageable.

calendar of appointments - life with a chronic illness! — A life with a chronic illness needs careful organising – calendar often full of doctor and hospital appointments

To create a ‘new normal’ out of the broken and destructive pieces of our old lives.

Our calendars once crammed full with future parties, and all the invitations that asked for our attendance now erased. In its place, a carefully organised calendar detailing the many doctor and hospital appointments that accompany this new chronic life.

None of Us Knows What The Future Holds

Oh, the future which in the past seemed so bright and exciting. The endless possibilities that it once promised now seemingly lost forever. Although none of us knows what the future holds, those living with a chronic illness knows that it is one filled with pain, tears, exhaustion and the many other things that accompany it.

"Although none of us knows what the future holds, those living with a chronic illness knows that it is one filled with pain, tears, exhaustion and the many other things that accompany it." Click To Tweet

Still, there are a million questions and uncertainties that the future holds out in its hands. Even living with the certainty of illness, there are still endless possibilities to explore if only we find the courage to do so.

Yes, the possibilities might be sparse and limited due to the many limitations that lie in the wake of illness, but they do exist. And for that provides a glimmer of hope and promise.

The Before and Afters of Life With Chronic Illness

Life is often a series of before and afters especially when we experience something significant. When diagnosed with a chronic illness life becomes defined by the before and afters of life with chronic illness.

When diagnosed with a chronic illness, life is split by the before and after. Life now defined by the before and afters of life with a chronic illness. It is up to us to make the most of the unchangeable situation.

"When diagnosed with a chronic illness, life is split by the before and after. Life now defined by the before and afters of life with a chronic illness." Click To Tweet