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Welcome to the Health Activist Writer’s Month Challenge brought together by WEGO Health – a social network for all health activists.  Again, I am participating in the annual Writer’s Month Challenge in which I will be writing about my health activism and health condition based upon given prompts.

Friday 10th April: Comfort Food

We’re not all 5 star chefs, but we all need to eat!  Tell your readers how to make your favourite dish.  Does the recipe hold a good memory for you?  Is it the act of cooking itself that brings you joy, or the people that come together to eat it?

Admittedly, because of my condition it is incredibly difficult for me to be able to cook – weakness in the legs and the potential for them to give way with no prior warning therefore makes it dangerous to be able to cook dinner for myself or others.

Consequently, I have to rely on my parents, particularly my lovely Mum to cook dinner in our household.  Not that I don’t do any cooking at all; in fact once a fortnight I help prepare the lasagna.  Usually on a Friday afternoon, ready for Saturday night.  And as the dish is for the next night, it means that I am able to take my time and do the preparation and cooking of the meat sauce in stages, taking breaks when I need them and relying on my perching stool when my legs are trembling badly.

The meat sauce prepared by myself
The meat sauce prepared by myself

After the meat sauce is cooked, my Mum makes the bechamel (white sauce) sauce before assembling all the layers in the dish, letting it rest and placing it in the fridge.  Even just preparing the meat sauce tires me and leaves me feeling weak so in some ways I am glad that I do not have to cook on a regular basis.  I do enjoy the process despite this however, and it makes me feel useful and that I am contributing a little to our household.

I love food, although for some quite time I have been experiencing a lot of nausea and as a result I am not always in the mood, or enthusiastic about mealtimes.  However, by living with parents, I am encouraged to eat even when I don’t want to!

However, the favourite dish that I am going to tell you all how to cook, is one that we first made recently, and is one that is special as it is a meal that my Mum and I cooked together, spending quality time with each other and is also a time that despite experiencing a lot of nausea, it was a meal that I thoroughly enjoyed and felt good after eating.

It is also a meal that is healthy and low in fat and as it is a dish that includes spinach it can help with symptoms including fatigue due to the iron!

LINGUINE WITH GARLIC, PRAWNS & SPINACH

Serves 4

300 g linguine (or spaghetti if you prefer)
salt and freshly ground black pepper for seasoning
4 tablespoons of extra virgin olive oil
1 garlic clove, sliced
150g spinach leaves
400g uncooked prawns, peeled
4 tablespoons chopped flat-leaf parsley
grated zest of 1 unwaxed lemon
10 cherry tomatoes, quartered

  1. Cook the pasta in a large saucepan with plenty of boiling salted water until al dente
  2. As the pasta is cooking, heat the oil in a large frying pan over a medium heat and fry the garlic for 1 minute until golden.  Then add the spinach and cook for a further 2 minutes
  3. Add the prawns with the parsley and season with the salt and pepper.  Stir well and continue to cook for a further 2 minutes or until the prawns are pink
  4. Once the pasta is cooked, drain and add to the frying pan with the other ingredients, then lower the heat
  5. Add the lemon zest and cherry tomatoes and stir everything together
  6. Serve and enjoy!

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Welcome to the Health Activist Writer’s Month Challenge brought together by WEGO Health – a social network for all health activists.  Again, I am participating in the annual Writer’s Month Challenge in which I will be writing about my health activism and health condition based upon prompts given.

The prompt reads as given:

And the winner is…You!  You just won an award and are on stage, holding your trophy.  Write an acceptance speech.  Who do you want to thank?  How did you get to where you are today?  Don’t worry, we won’t rush you off the stage!

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Wow, this is an amazing honour and so I think the first people that I need to thank is those who voted for me, as without them I would not be standing here today.

I would also like the opportunity to thank my family, especially my parents who have gone beyond the parental duty in their support that they shown me during the journey through illness, diagnosis and life after. I would like to thank them for all their help and care over the years.  For picking me up when I have fallen, for taking me to every hospital appointment, and just by being there for me during the bad times.  Just for being your caring and wonderful selves.  I appreciate you both so much and cannot express how much you both mean to me.

I would also like my wonderful and supportive friends who I am very grateful that I found, particularly Claire, Aisha, Anya and Hayley.  All of your messages, cards and gifts have meant the world to me, and have helped me during the bad times.  You girls have shown me what friendship means and also that I am not alone in the journey through chronic illness.  To Claire, thank you for all of the enjoyable and fun nights out which we have shared, they have been exactly what I have needed to take my mind off my condition and the symptoms, as well as the opportunity to have a break from being inside the house and enjoying lovely food!

My friends are definitely like stars...they make my life shine a lot brighter
My friends are definitely like stars…they make my life shine a lot brighter

To Aisha – I cannot find the words to describe exactly what you mean to me.  Finding you has been like finding a diamond.  During my childhood and adolescent, and even into adulthood, friends have come and gone.  It felt as they could not accept me as I am, and therefore I am so grateful to have you in my life and know that I have friend that I can always count on during the good times and the bad.  You have become more like a sister to me, and I look forward to our many years of friendship.

Anya, thank you so much for all of your support; not just for me but for my blog also.  We both connected with each other through our blogs; and you inspire me with your eloquent writing and all of your amazing work in the field of self-management.

And finally, to Hayley who has worked tirelessly to create a fantastic community for those affected by neurological conditions; I am so blessed to have found a place where I belong, and thank you for making me a part of it and giving me a sense of purpose. And to every person who has contributed to Neuro Nula, whether it be through sharing your own personal experiences and stories of living with a neurological condition or connecting to the community via Twitter, each and every one of you are inspiring; thank you for shining a light on what it is to live with such a condition as well as making me and other’s like me feel less alone.

I should also thank all of the readers of my blog ‘My Brain Lesion and Me’.  Thank you everyone who has taken the time to read, share and comment on my posts, as well as all of my lovely and loyal Twitter followers.  Thank you for your kind and generous words, and a special thanks to everyone who has sent me words of encouragement and support during the darkest moments, or just have taking time out of their day to ask how I am feeling and generally making me feel less alone in the world.

I must also thank to all of the doctors and consultants that I have seen over the years; unfortunately there are too many of you to mention personally, but those doctors who believed me and diligently looked for the underlying cause of my symptoms.  For so long, I believed that I was strange; that everything I was experiencing was in my head and after all of you took the time to perform tests and take a thorough history, all of you took some part in arriving at the eventual diagnosis.  I now know that it is not in my head; and that is down to all of your hard work.  Thank each and every one of you for your patience, diligence and support. We now know that there aren’t many options in terms of treatments; no cure, but that does not stop you trying for me and attempting to give me a better quality of life.

And lastly a thank you to my condition.  Yes, it may be strange thanking something which makes my life extremely difficult, and as a result have to live with such severe symptoms on a daily basis.  However, despite this I would like to thank the neurological condition for making me stronger; for making me aware that with perseverance I am able to overcome obstacles and challenges that are placed in my way.  I have found an inner strength, that I didn’t know I possess and perhaps if it wasn’t for this condition I would not have found the things that I am good at, such as writing.

Each and every person I have thanked has shaped the person I am today, and without all of you I would not be standing here today.

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Hello everyone, hope you are all doing well.  Well, time for a brand new post for the HAWMC Challenge by WEGO Health.  Today’s prompt reads as the following:

Dear 16 year-old-me…Write a letter to yourself at age 16.  What would you tell yourself? What would you make your younger self aware of?

It sounds so easy, but think it has been a real challenge even though it was only 10 years ago since I was 16.  I remember at the time it was a very painful and difficult time in my life, so the letter that I have written is very personal and isn’t easy to write, especially dredging up the emotions and feelings that I was feeling at the time…

Image: http://reshapecoach.wordpress.com/2012/01/23/write-a-letter-to-yourself/

Dear Rhiann,

It’s hard to believe but this letter is from ten years from now, the year is 2012, and the future you is writing this.  I know you are going through a very painful and difficult time in your life, having formally been diagnosed with depression, and having to start taking antidepressants a couple of days before your sweet sixteen.  Writing this, I remember how sick they made me feel for the first couple of weeks, only being able to eat very little before I felt full.  I also remember the incredible loneliness I felt back then, especially during school time having no friends and walking around in a daze, trying to pass the time until lessons started back after lunch.

But I want to reassure and to let you know that all these problems are ‘not just in your head and you are not crazy or a ‘freak’.  I am not able to say what is wrong, but the dizziness that you experience, you are not imagining it.  I know you feel that there is something wrong, the doctors telling you constantly it is anxiety related.  And you timid and compliant, are too afraid to tell them otherwise, thinking that they are the professionals, “so must know what they are talking about”, making you doubt yourself that the symptoms you are exhibiting are even real or they are not as real as you imagine.

But, remember doctors do not know everything.  As tests are coming back normal, and cannot find a cause for the dizziness, the doctors then explain it away by claiming that it is all psychological.  But it isn’t…Please do not give up and lose hope that they will never find out a cause, they do!   It may take several more years, but you do find out….

I cannot say it isn’t going to be easy, or that it’s going to get better and you are going to live a full and normal life, but I believe that you are stronger than you think you are…and you can handle a lot more than you think you can…

And the loneliness you feel – it will go away, you are going to find people who will accept you for who you are, friends that are going to support you in times of need.  I remember at sixteen being teased and ridiculed for who you – just remember that no-one has a right to make you feel that you need to apologise for who you are.  Don’t be ashamed to be yourself…

And just wanted to say – the heaviness and stiffness that you feel in your legs?  The feelings that have been with you, since you can remember?  Well, these feelings, they aren’t normal and isn’t something that everyone experiences…Maybe mention this at your next doctor’s appointment.

And good luck for your GCSE exams in a couple of months – not that you need it, you are going to do great.  Next stop will be your A-Levels, and then who know maybe even to University 😉

Take Care and remember to persevere with the doctors – never stop searching for an answer, and never let them tell you that’s all in your head.

From yourself (at aged 26)

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