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Lighting the Flame for Invisible Illness

A friend of mine, a lovely woman whom I connected with through this blog, recently asked me to take part in an awareness campaign to shed light on invisible illnesses and the debilitating effects that they can have on the lives of those affected. We found each other as we both share a diagnosis of Functional Neurological Disorder (FND).  This is a disorder which is a result of a problem, often of an unknown origin, of the central nervous system whereby...

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A Diagnosis Matters…

Being undiagnosed and having no answers for the peculiar going on inside our bodies is very much like being stuck in a darkened room with no light. [caption id="attachment_71739" align="alignnone" width="1125"] Living without a diagnosis is very much like life in the dark[/caption] After every uneventful doctors' appointments, and every negative test results only moves the light switch further from our grasp, and we remain, still in the dark.  You begin to fear every upcoming appointment for the worry that this meeting will...

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Self-Care & Happy Distractions

Living with a long-term health condition is hard.  Every day seems the same with juggling the ordinary daily tasks of life with the many symptoms and other effects that chronic illness imposes on our body.  There are so many demands on our bodies, which is why self-care is so critical to our overall well-being. Self -care can take many forms.  Relaxing, participating in a favourite activity or hobby or just taking time out to enjoy a luxurious bubble bath are some ways...

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A Chronic Illness Playlist

Last week, I wrote a blog post about the power of music and its ability to connect with us on a personal level.  The ability of music and its melody or lyrics to express and convey emotions that we are experiencing at a particular time.  In the post, I also shared the lyrics that I have been able to relate to from the perspective of someone living with a neurological condition. But music has the power not only to express such...

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The Soundtrack of a Chronic Life

There's not much in this life, especially in this modern age, which connects us all, but the music is one of them.  After all, it has been used as a means of expression and entertainment in all times and cultures.  Music, it is said is a powerful tool as a means of expressing emotions such as love, hope, joy, and regret as well as being a device for sharing our individual stories. Everyone may not share the same taste in genres...

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