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Chronic Illness

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A few weeks ago I was contacted by a friend about an exciting community project in Cornwall entitled ‘We Are Enough; The Creative Yarn Bomb of Love.’  Its ethos is to raise awareness about mental health; to bring people together to share experiences and encourage self-expression through creativity.  All forms of creativity are encouraged such as knitting, crocheting, writing, painting or photography while also spreading positivity and kindness.  A project to help people who may lack self-worth to know that we are all good enough just as we are.

The project will culminate in May 2019 to coincide with World Mental Health Day with a massive yarn bombing, whereby spaces across Cornwall, its structures and objects will be transformed, covered with decorative knitted and crocheted material to promote and raise awareness about mental health. You can click here to find out more about the We Are Enough project.

My friend asked if I somehow wanted to get involved in the We Are Enough and I, of course, said yes.  It is a brilliant project, and I know so many people who have had experience of not feeling good enough and plagued with self-doubt and suffering low self-esteem as a result.  Due to poor manual dexterity due to the Functional Neurological Disorder I suffer from, I am unable to crochet and knit, so I thought instead I would put pen to paper (or fingers to keyboard) and share my own experiences of not feeling good enough…

I suppose I have had the feeling of not being good enough for a long time now; for far too long that I am no longer able to remember exactly when these negative self-beliefs began.

These beliefs became more evident when the symptoms become a more significant part of my life, mainly the dizziness and the problems they caused with being able to handle being in certain places such as buildings with high ceilings, for example.  I hated these symptoms and the limitations they placed in my life, being able to enjoy an outing to the cinema became increasingly difficult due to the severity of the dizziness and vertigo.  I didn’t hate these symptoms (and later the neurological condition) just because of the limitations, but also how these set me apart from everyone else.

[Tweet “I not only hate the limitations, but also how the symptoms set me apart from everyone else.”]

Being different and standing out from everyone else can be very lonely and isolating
Standing out from everyone else can be incredibly lonely and isolating…very often leading to feeling not good enough

These symptoms began in early childhood and stayed with me throughout my adolescence and beyond.  A time when any differences that set us apart from everyone else are more apparent, especially to those within our peer groups.  And unfortunately, these differences can lead to bullying and ostracisation, which is what I frequently experienced throughout my school years, especially during secondary school.

In my experience, it is one thing to think negative and demeaning judgments about yourself, but to hear them from other people only reinforces these beliefs and are once again enforced on this perceptual cycle of not feeling good enough. And every time we are ignored or not given an invitation on the latest night out, or party once again reinforces to ourselves that we are not good enough.  And as this perceptual cycle repeats, again and again, it is no longer a belief, but becomes our truth.

[Tweet “Continuously hearing negative judgements about yourself enforces the belief we are not good enough.”]

We can feel defined by our imperfections, whether they may be physical imperfections such as scars, or a perceived character flaw or like me, suffering from a medical condition that makes you different.  So much so, that we are unable to recognise the positive attributes that make us stand out, and unique to those who love us unconditionally.  In the past, I’ve gone on numerous courses, many of which worked on increasing self-confidence and self-esteem and part of this was to write a list of what we liked about ourselves.  Asking other people who are close to me, they could list many things that they liked about me. However, I struggled to come with one single item on the blank piece of paper.

Even now at age 32, those feelings of not being good enough has followed me through those turbulent years of adolescence and into adulthood.  At university, much like my school days, I lacked confidence, continually doubting my abilities, never satisfied that my latest essay was ever good enough, or convincing myself that I failed the exam I just came out of, although I never had any evidence to support these assumptions.

In today’s society, we are taught the value of being productive, and as such as someone living with a long-term neurological condition and unable to work once again reinforces this belief that I am not good enough, somehow unworthy of having beautiful things or the opportunity of good things happening to me.

I am imperfect, and the condition that is now a constant part of my daily life is somehow my most significant imperfection.   An imperfection that has caused significant cracks, and weakening every part of my life.  But, have you heard of the term Kintsugi?  Well, kintsugi is the Japanese art of repairing broken pottery.  Broken objects, such as pottery are often repaired with gold.  These imperfections or flaws are seen as a unique piece of the object’s history and which adds to its beauty.

kitsungi an art form that turns brokeness into beauty
The Japanese art form known as kintsugi turns brokenness into beauty

Beautiful isn’t it?  But why do we not see imperfections and flaws ourselves in the same way – as something as unique and adds to our beauty instead of something to be ashamed of, doing our best to hide them from others.  To see something that sets us apart as something to celebrate and be proud.  Yes, the symptoms of the neurological condition that I live with may make doing some activities such as going to the cinema as difficult but isn’t it the fact that I have refused to let it stop me from doing certain things that is a sign of my strength and what should be celebrated?

[Tweet “Perfection is a social construct and not a reality; no one is perfect.”]

The fact is that perfection is a social construct and not a reality; no one is perfect. We all have flaws and imperfections whether they may be real or imagined, but what does matter is what we believe about them.  We can tend to give these flaws with more power and importance than they warrant, believing that our imperfections somehow makes us less whole.  Less worthy. But in truth, we are all good enough just as we are.  And our flaws and imperfections are gold-filled cracks that make us unique and adds to our beauty, and not which diminishes our light within.

[Tweet “We believe that our imperfections somehow makes us less whole. Less worthy.”]

Remember, you are good enough just as you are.

To find out how you can get involved in the We Are Enough project from your own home too, go to QuietConnections.co.uk/We-Are-Enough/

[Tweet “In truth, we are all good enough just as we are.”]

Thank you again to Robert (A 30 Minute Life) and Jen (Tripping Through Treacle) for nominating me for this incredibly uplifting and inspiring quote challenge! The written word has the power to uplift and inspire, and can help us to remain resilient during the darkest times. This challenge is a perfect chance to remind me of so many of the beautiful quotes that can help to turn on the light when times are darkest.

The rules of this challenge are as follows:

  • Thank the person who nominated you
  • Post a quote for 3 consecutive days (1 quote for each day)
  • Share why this quote appeals to you
  • Nominate 3 different bloggers for each day

And the final quote for this challenge is:

[Tweet “Everyday may not be good, but there’s something good in every day”]

The quote again is one of my favourites and one I am continually reminding myself of, on the many rough days that I experience because of chronic illness and chronic pain, the two constant companions in my life.  On these dreadful days, days where we are unable to see the light at the end of the tunnel, it is easy to forget the many pleasant things that make up our life away from constant illness and pain.

At the end of these crummy days, it is so easy just to write off this day as terrible but in my experience, our days are never just wholly bad or good.  There is always something to be thankful, every day there is something good, as small as it may be, in every single day, no matter how horrendous we may have felt.

That is why the above quote appeals to me and is vital in my everyday life; it makes me appreciate the small, amazing moments in my life amidst even the bad.

My nominees for today are:

Thank you so much again to Robert (A 30 Minute Life) and Jen (Tripping Through Treacle) for both nominating me for this quote challenge! The written word has the power to uplift and inspire, and can help us to remain resilient during the darkest times. This challenge is a perfect chance to remind me of so many of the beautiful quotes that can help to turn on the light when times are darkest.

The rules of this challenge are as follow:

  • Thank the person who nominated you
  • Post a quote for 3 consecutive days (1 quote for each day)
  • Share why this quote appeals to you
  • Nominate 3 different bloggers for each day

Today’s quote:

[Tweet “Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind”]

This quote immediately came to me, especially after sharing an old post that I wrote two years ago.  We have all been in the position in which other people have hurt us, either by their actions or by their words.  When living with a chronic illness, there are many ways in which I and others who’ve been hurt by the actions or words of other people.

One such example is by being ostracised or excluded from social engagements, and although many of these many instances may not be intentional, it doesn’t nevertheless lessen the hurt. When our conditions are invisible, many people may even doubt your illness, which when you continuously suffer from debilitating symptoms, it can hurt even more than any symptom can.  But, just as the quote above states, those who matter are the ones who believe us even when every test fails to provide any answers.  The ones who matter are those who are always there for us whenever we need a shoulder to cry on, in need of help around the house or need groceries or other essentials we’re unable to get ourselves.

Those who doubt us exclude us or hurts us don’t matter, and we should only concern ourselves who do.

And my nominees for today are:

Thank you so much to Robert from A 30 Minute Life and Jen from Tripping Through Treacle for nominating me to take part in this brilliant quote challenge!

Anyone who knows me will know that I love quotes and positive affirmations to remind me of the beauty that exists in the world despite the darkness and all of the terrible atrocities that happen all around the world.  As someone living with chronic illness and who regularly struggles, bombarded with many different symptoms, quotes are a helpful reminder that there is still good that exists in my life, and the bad days will pass, making room for days full of joy and positivity!

The rules for this challenge are as follow:

  • Thank the person who nominated you
  • Post a quote for 3 consecutive days (1 quote for each day)
  • Share why this quote appeals to you
  • Nominate 3 different bloggers for each day

[Tweet “For I’m not afraid of storms, for I’m learning how to sail my ship”]

 

‘Little Women’ has always been one of my favourite novels, having read since I was a young girl.  This beautifully written novel has always spoken to me, being able to relate to the struggles of each of the four siblings at different times of my life.

It has always been one of my favourite quotes from ‘Little Women’ book, serving to remind me that although storms elicit panic and fear, these are the conditions that we often learn the most.

For me, living with a neurological condition, the many challenging flares that I’ve experienced has only sharpened my awareness of the coping strategies that best help manage the symptoms, and in turn, helping when the inevitable next flare strikes, making the storm less severe, and me better at handling the rough waves.

My nominees for today are:

After Mum and I enjoyed a spa break for my 30th birthday, we decided that whenever we had time, we would book a spa day for us both.  Unfortunately, due to unforeseen circumstances, we have been unable to enjoy a spa day together for almost a year. But with my impending birthday, we thought that it was time for some much-needed R and R.

Excitement and anticipation soon start after phoning our local spa, for a day pass. The pass includes one of their luxurious treatments and a heap of other benefits. Benefits which include full use of the spa and leisure facilities, two-course lunch buffet and complimentary towel, robe and slippers.

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A spa day is a lovely and relaxing treat for anybody, but especially those with a chronic illness

A relaxing spa day is a sublime treat for both myself and the person with whom I’m going. And provides something to look forward to beyond the daily life of managing unpleasant symptoms like chronic pain.

A spa day is something to look forward to beyond the daily life of managing unpleasant symptoms like chronic pain. Share on X

However, not only is a spa day something lovely to look forward to. But as someone living with chronic illness, I have found that I benefit immensely from it.

And I think a spa day would be beneficial for those living with chronic illness; and here are some of the reasons why:

A SPA DAY ALLOWS YOU TO SPEND QUALITY TIME WITH LOVED ONES

Before my symptoms became disabling, my Mum and I loved nothing better than to travel to Cardiff. To spend the day together for some retail therapy, and perhaps even take the opportunity to eat out.

However, now as my mobility has worsened, my legs so weak that they give way easily and with no warning.  These days out together are no longer possible, not only because of the debilitating physical symptoms but also due to energy limitations.  I just don’t have the energy to do these type of high-energy activities anymore.  Not without paying a hefty price afterwards. Punishments such as a significant increase in the severity of the symptoms I already have to endure.

Like many of us living with chronic illness, it means that I often have to miss out on social gatherings. Something that is one of the most upsetting and frustrating things about living with a long-term health condition.  However, a spa day allows you to spend quality time with a friend or loved one. One that is thoroughly relaxing and low-energy, perfect for those of us with chronic illness

A spa day is thoroughly relaxing and low-energy, perfect for those of us with chronic illness. Share on X

SPA DAY: BEING ABLE TO UNWIND, DESTRESS AND INDULGE IN SELF-CARE

Like many others living with chronic illness, the condition and its constant and unrelenting symptoms cause me stress.  And never more so when I am experiencing a severe flare, much as I have done recently.  By going on a spa day, however, gave me the opportunity to escape the day-to-day stresses of living with chronic illness. Providing an opportunity to unwind and relax.  As all of us are aware, stress can often exacerbate our symptoms; by going on a spa day, it allows you the opportunity to focus on you and your needs.

A photo of the Relaxation Zone at the Vale Spa in South Wales

Like osmosis, the calm and relaxing atmosphere of the spa itself seeps into my body making me calm and relaxed despite any pain or discomfort I’m experiencing.  Hell, I become so relaxed that I end up catching on any missed sleep in one of the Relaxation Zones. Bliss!

By going on a spa day, it allows you the opportunity to focus on you and your needs Share on X

THE TREATMENTS ON OFFER ON A SPA DAY CAN HELP REDUCE CHRONIC PAIN 

There are a variety of treatments and massages on offer in spas like the one I frequent.  For those who can tolerate touch, as some suffering from allodynia would not benefit from such treatments.  One of my favourite treatments is the aromatherapy massage. But a hot stone massage may also be beneficial for those suffering from chronic pain. Research has found that the therapy eases muscle stiffness, increases circulation and metabolism. It also increases blood flow throughout the body as the hot stones help to expand blood vessels.

Furthermore, massages have also been found to release the same ‘feel-good’ endorphins that you get from working out.  The release of endorphins acts as a natural pain reliever.  The more your body produces these endorphins, the quicker it learns how to release them.  Therefore, regular massage therapy helps to stop the buildup of toxic blockages that hinder the flow of oxygen around the body causing pain and inflammation and to also help the body’s response to it.

spa-day-massage

An aromatherapy massage as well as having the same benefits as listed above is also said to ease headaches, improve sleeping problems, lowers feeling of anxiety and improves mood.  The practitioner can tailor the aromatherapy oils depending on you and your symptoms.  During a previous massage, peppermint oil was used on my body, including my stomach. I found that this really helped ease nausea I experience as a side effect of the medications that I take.

I also love having a facial, which is just as relaxing as any of the other treatments already mentioned. Afterwards, my skin is glowing making me look healthy and radiant. A natural healthy glow instead of the pale and unhealthy complexion which has become my norm. And when I look good, I also feel good.

THE HEALTH BENEFITS OF THE OTHER FACILITIES ON OFFER 

As well as delivering ultimate pampering treatments, most spas also have jacuzzis, saunas, and steam rooms to use during your stay.  Jacuzzi’s are excellent for those like myself who suffer from neurological conditions. The warm water decreases joint stiffness, normalises muscle tone, as well as promoting muscle relaxation all helping to relieve pain. I love spending time in the spa’s jacuzzi, and feel relaxed and rejuvenated doing so. And experiencing a reduction in the amount of pain I am experiencing.  I find it so beneficial that it’s difficult getting me out of there!

jacuzzi-whirlpool-spa
There are plenty of benefits for using jacuzzi’s and steam room, both popular in spa resorts

There are also many benefits of using saunas and steam rooms.  Saunas, for example, are great for detox, as sweating is one of the best ways to remove toxins from the body.

Saunas and steam rooms are although not suitable if suffering from heat intolerance which many suffering from neurological conditions do.  However, even a few minutes in the steam room or sauna can be beneficial. In addition to detoxing, they may also help to reduce inflammation and pain.

sauna-spa

Furthermore, it’s important to reiterate that spending time in hot water and facilities such and saunas and steam rooms can be as good as exercise.  Great news for those who find exercise difficult because of their condition. But it is still important to pace yourself especially for those who struggle with fatigue.  Also, if you have a high blood pressure than you need to consult a medical professional as it may be unsuitable.

A SPA DAY: NO PRESSURES AND A DAY OF NORMALITY 

We all have pressures in our lives whether it comes from work, family, or friends.  When living with chronic illness, we may often feel pressure to do things that we might not feel physically able to do, others not understanding why we can’t because we look healthy on the outside.  Them not understanding how we can still be in pain, or feel so fatigued.

A significant advantage of a spa day is that there are no pressures from others or any need to places any burden on ourselves to do this or that because we feel we should be doing something than resting and looking ourselves. On these days, there is nothing to do but care for ourselves, listen to our bodies and instead do what we need to for us.  A day not continually checking social media, and worrying about what is going on around us.  A day just for us.

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A DAY IN WHICH THE LIMITATIONS OF CHRONIC ILLNESS DO NOT DEFINE ME

At the spa, I feel completely safe and at ease in the environment, which is not always the case because of my neurological condition.  But there, I can take everything at my own pace, even being left alone in one of the relaxation areas while my companion goes to another part to do what they want. It’s, in fact, a spa day is one in which I almost feel ‘normal,’ a day which I am not defined by the limitations of my condition. A day with no ‘I can’t’ and being stopped by the symptoms that I endure because of said condition.  All there is to do is lie back, relax and enjoy!

…I almost feel 'normal, a day which I am not defined by the limitations of my condition. Share on X

There are just a few of the many reasons why a spa day can benefit for those living with chronic illness.  I always come away feeling tired, but still incredibly relaxed, happy and even in less pain.

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My local spa has become a ‘happy place’ to me

I definitely feel and enjoy the benefits of a spa day and would recommend it to anyone.  Plus, it provides a fun and relaxed day out. One that I can actually enjoy and feel comfortable in my surroundings, and allows me time to spend with Mum away from home. I cannot wait until our next day whenever that will be!

Have you tried a spa day?  What did you think?

Let me know in the comment box below or let me know via social media!

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